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X-PLAIN THIS!

BY MARC MUHLMEISTER

My name is Marc Muhlmeister, and I have fragile X which means, by definition, I am cognitively impaired. That just goes to show how meaningless definitions are because I am most certainly not cognitively disabled. And now that I can talk by spelling, I believe that I can be a spokesman for others like me. All people who are nonspeaking are defined by that inability. It’s a wrong that must be righted. I am to be a voice for change. 


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9/5/2024 7 Comments

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Few people have a family like mine. Hallmark moment: I am loved no matter how many times a day I need to change my shirt. And believe me, that’s a lot. I feel so fortunate in that. For all my life, I really haven’t wanted much. All I really wanted was to talk and to have friends. And I wanted to be loved. All my life I was loved by my family, and now I am loved by so many real friends. I can talk now too, which is the icing on the cake of my life. 

So what lessons have I learned? Firstly, dreams can come true. Secondly, I didn’t dream big enough. Lol! I am going to create new and bigger dreams. I allowed my fragile X diagnosis to control me too much. I knew I was not cognitively impaired, but still fell into a pattern of thinking that made me doubt myself. Basically, I had no real ambition because, why bother? And that, of course, had  me wishing for very little. 

Now that I can talk I am rethinking my own wishes. I am completely capable of academic achievement, for example. I believe I am capable of going to college. I am capable of more.


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7 Comments
Annika Cioffi
9/5/2024 02:37:41 pm

Love this post! Yes Marc - you are so capable and evaluating and reevaluating your wishes and dreams and goals is your right!! You GO!!

Reply
Joanne
9/5/2024 06:39:35 pm

Marc you are loved more than you know!! I love you so much!! You are definitely capable of doing anything you put your mind to. Keep shining bright!

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Linda Bing
9/5/2024 07:43:49 pm

Marc you are an inspiration to everyone who comes in contact with you!❤️

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Jeanine Stern
9/6/2024 07:31:04 am

You are an incredible! Keep inspiring others to go after their dreams!! You are not defined by your disability 🙌

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Heather Sarmiento
9/6/2024 10:37:39 am

Hi Marc. I am so inspired by your writing and your insights. I hope you keep writing and sharing your thoughts with others!

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Jane rosenzweig
9/7/2024 11:32:43 am

thank you mark, for a great dose of inspiration!

ps I’m your moms friend from high school and your voice (warm, witty, reflective, etc etc etc) reminds me of her! ❤️

Reply
Michael Marshall
10/2/2024 03:53:03 pm

G-d bless you Marc! You are an inspiration!

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