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BY MARC MUHLMEISTER

My name is Marc Muhlmeister, and I have fragile X which means, by definition, I am cognitively impaired. That just goes to show how meaningless definitions are because I am most certainly not cognitively disabled. And now that I can talk by spelling, I believe that I can be a spokesman for others like me. All people who are nonspeaking are defined by that inability. It’s a wrong that must be righted. I am to be a voice for change. 


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12/18/2024 0 Comments

Lucky Me

For all of my life people believed that I am cognitively impaired. But I am not - which begs the question, how many people in this world are misunderstood? I have been thinking about it a lot recently. Maybe it’s this time of year that has me reflecting on my life, and how fortunate I am. I am one of the few with Fragile X who have the ability to spell to communicate.  I am lucky to be sitting here with Judy writing this. I am lucky that my parents loved me enough to not give up on me. I am lucky that my Mom brings me to Mouth to Hand several times a week. I am lucky that I belong somewhere.

I hate that there is so little belief in the Fragile X community of our being cognitively intact. I am facing disbelief everywhere. It is upsetting to me, but it also reminds me that I am incredibly lucky.
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