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X-PLAIN THIS!

BY MARC MUHLMEISTER

My name is Marc Muhlmeister, and I have fragile X which means, by definition, I am cognitively impaired. That just goes to show how meaningless definitions are because I am most certainly not cognitively disabled. And now that I can talk by spelling, I believe that I can be a spokesman for others like me. All people who are nonspeaking are defined by that inability. It’s a wrong that must be righted. I am to be a voice for change. 


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11/21/2025 0 Comments

My Two Cents

I have two things to say today. Firstly, for you parents out there: stay calm. Your stress adversely affects us. I am already battling anxiety like you wouldn’t believe, as are most of us. So when you get anxious, it puts us over the edge.  Being calm can actually help to regulate us. Certainly, giving Judy credit, her calmness helps particularly well. My whole body relaxes when I am next to her.

Let me move on to the next thing I wanted to say. Being nonspeaking sucks, but it’s not the worst part of everything. The OCD is. It’s torture. Your actions have to coincide with its demands, even though you want to do something else. I get more remorseful than I can say when my OCD ruins things for my family. Many of us have the same issue. My life is mostly dictated by its demands.

So when we can’t do things because OCD is telling us not to, don’t get angry. We are not being difficult. We can’t help it. Stop making us feel even worse than we already do.  To everyone else it might look like we are being difficult, but you need to remember that we are not making a willful choice.
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