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BY MARC MUHLMEISTER

My name is Marc Muhlmeister, and I have fragile X which means, by definition, I am cognitively impaired. That just goes to show how meaningless definitions are because I am most certainly not cognitively disabled. And now that I can talk by spelling, I believe that I can be a spokesman for others like me. All people who are nonspeaking are defined by that inability. It’s a wrong that must be righted. I am to be a voice for change. 


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8/26/2024 5 Comments

I Am Who I Am

We are at an interesting time in history when human rights are a major topic across the country. I feel that with the growing acceptance of people’s differences there will soon be acceptance of spelling for communication. I am labeled with a genetic disorder because I am missing a part of a chromosome. That led to a formal diagnosis of cognitive disability. And I had no real way of letting people know that wasn’t the case. 


After I could talk, there were still people who doubted. After all, someone with Fragile X must absolutely be cognitively deficient. Hard to have an open mind when everything you’ve learned tells you that. Seeing familiar people disbelieve my true abilities hurts. Can I teach them to see me as I truly am? I have decided to try, using this blog as a platform. 

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