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SPEAKING FOR MYSELF...

BY ALEX GORMAN
I am definitely the luckiest person on the face of the earth.  Each day we nonspeakers can easily choose to feel sorry for ourselves. But nothing really easy is ever as good, I believe.  To be happy is not an easy choice, but it's one I choose to make.  Easy things are what some gravitate towards...but not me. The best things in my life, and the people I love most, have either been the hardest or worked the hardest. And these things, the hardest, feel the best because they represent achievement.  This blog is about being lucky, working hard, achieving goals, and being what I've decided to be:  happy.
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9/2/2024 5 Comments

The Easy and The Hard

This time last month I was in a medically-induced coma, in the ICU of Long Island Jewish Hospital.  My mystery condition, that had made my life and my family's lives, a living hell for 4 1/2 years had become life threatening.  I couldn't eat most of the time because food gave me utterly horrific nausea.  Eating so didn't feel right: I really could not eat.  Worse than that, my mind was gone. Every moment of every day was a blur of total insanity.  Writing this blog post is decidedly not fun.

The reason I am writing it though is to talk about my Mom.  There are no words to explain what she has done for me.  I know what easy would have looked like. It would have had me strapped to a bed in a nursing home, testing patient cruelty regulations because how much screaming can anyone take?  I still can't believe that Mom had to listen to that every day, for years.

But Mom never does easy...and no one does tenacity like her.  You cannot understand how hellish these years have been for her, and how many times really were potentially dangerous. There really is no way I can explain how horrific this illness has been.  Easy would not have me sitting here today writing this.  Tenacity that is boundless, and had her searching for answers without pause, never stopping no matter how many times she failed, is why I am saved.

The best years of my life are in front of me because Mom was really trying every day, year after year.  I am wearing quite the smile as I finish this post. The determination my Mom demonstrated to help me will energize and encourage me to always do the hard.  It's worth it.

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5 Comments
Dan Bergmann
9/3/2024 03:51:59 am

Welcome back, Alex! I hope you can rest up from this experience knowing that the world values you and you have a place in it. I know about easy and hard, and I know you won’t always have to do hard 24/7. Judy, all of us have parents who go above and beyond, but you are in a class by yourself. On behalf of all of us whose lives will be enriched by having Alex in our lives, I thank you.

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Jim Cutie
9/3/2024 05:15:24 pm

Alex.

It’s always good to see you, and now to see you writing again. There’s so much to say, but I will simply say that you and your mom have achieved so much, and will no doubt achieve even more—and that there is no better achievement than one that helps others achieve, which is exactly what you both do every day. We are most grateful.

Jim

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Marina
9/10/2024 04:33:56 am

Dear Alex! Your mum is my hero and so are you! Happy for you and wising you all the best. I have no doubt that you have the best years of your life in front of you and hope very much to meet you again some time in the future when the political weather changes for the better. And, BTW, your girlfriend is awesome!

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Stacey link
10/28/2024 02:59:51 pm

Your account of your medical journey is deeply moving. The years of suffering you describe sound incredibly challenging. It's touching to see you acknowledge your mother's dedication during this difficult time. Her commitment to finding solutions and supporting you through such a complex situation demonstrates profound love and care. Your gratitude towards your mother and your resolve to tackle future challenges reflect your own strength and resilience. I recently learned of your blog from a post by Rabbi Shoshana Leis on JDIN. Thank you for sharing this personal story.

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Karen Lim
6/8/2025 09:06:52 am

I have read through your blog--all the posts that I can find. Thank you for sharing. Your writing gives me more insight into my son and how to help him. Thank you for your encouraging words. I have to believe that when my son is able to spell fluently, he will have the same thoughts about our persistence to help him overcome and have a voice. God bless you.

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