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SPEAKING FOR MYSELF...

BY ALEX GORMAN
I am definitely the luckiest person on the face of the earth.  Each day we nonspeakers can easily choose to feel sorry for ourselves. But nothing really easy is ever as good, I believe.  To be happy is not an easy choice, but it's one I choose to make.  Easy things are what some gravitate towards...but not me. The best things in my life, and the people I love most, have either been the hardest or worked the hardest. And these things, the hardest, feel the best because they represent achievement.  This blog is about being lucky, working hard, achieving goals, and being what I've decided to be:  happy.
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12/28/2025 3 Comments

Hopeless

All we nonspeakers are eagerly awaiting the day when there is a cure for this terrible thing. It will be the 30 year anniversary of my diagnosis in March. It appears we are making zero progress. You have to wonder why. How can no progress in three decades happen? 

There are clearly many reasons ranging from “why should we cure autism when it’s a glorious thing” to “there is no increase in cases of autism” to “if we search for a cure we may find out something inconvenient, like what causes it.”  I understand that it is complicated, so I’m not downplaying that.  Yes, it is complicated but I cannot believe it is beyond medical science to at least come up with something to alleviate the worst of our symptoms.

Absolutely my worse symptom was catatonia, but my current worst symptom is brain fog. My friends suffer from a plethora of issues ranging from OCD to seizures. We are medical complexities which no one actually understands.

I am waiting for a breakthrough that may never come. To be very honest, I am not very hopeful.

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3 Comments
Mike Sweeney
12/30/2025 06:16:45 am

Alex - deucie and Mike are reading this on the way back from Florida. After a wonderful week visiting our older son. And the new year I hope to bring more physical activity to mount the hand. If you read this blog, you will see that Danson and Anon both enjoy the regular physical exercise that we did over on the other side of the river. Happy new year and thanks for this https://open.substack.com/pub/outsidein51/p/spelling-communicating-and-hiking

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Nancy Alberta Naylor
12/31/2025 05:47:17 pm

Very well written. Would you mind if I shared it ? I think it is so important for voices like yours to be heard!

Reply
Alex
1/1/2026 12:00:04 pm

Please do share it, Nancy. All our blogs are to be shared - it's our way of reaching out to the world and being heard.
Thank you so much,
Alex

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