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3/31/2025 1 Comment

My Party

All my life, before spelling, I always dreamed of being invited to friends’ parties. In my mind I’d picture the invitations arriving in the mail, me opening them, and the day I’d go. I’d also have my own birthday parties. Happily, these dreams have come true. Alex’s bar mitzvah was one of the best days of my life, and this past weekend, I went to Kyle’s awesome thirtieth birthday party. Considering that I was never invited anywhere, there is no way to express how much this means to me.

I am kind of emotional writing about it, honestly. It has made me into a new person, getting invited. Now I am Luke who does get asked to go, and that makes me feel normal: normal people get asked to go to parties. Normal people that are asked to go to parties, in turn, invite their friends. So I have asked my parents to let me have a party of my own.

I want the experience of handing out the invitations, and planning all the food and stuff. I want to ask all my friends, and be there to welcome them. I believe that will be one of the best days of my life. I am going to have it on the beach. And I kind of want it to be a teacher’s appreciation party.

I already can’t wait.

1 Comment

3/3/2025 0 Comments

In a Mood

Calling the rest of the world stupid is totally too harsh, but I’m in a mood, so I will. All our lives we are faced with being called cognitively impaired. I am so over it. And we as a group probably have IQs markedly higher than normal. But the nature of our disability is that we look weird to outsiders. And our inability to talk means that we are unable to set the record straight. So now we show the world that we are highly intelligent and can talk by spelling and the world’s response is that it’s basically nonsense.

It is infuriating.

It allows them, for intents and purposes, to continue to psychologically abuse us. Can we really fight this? Can we fight the petty bureaucrats in government, who are probably on the take, getting bribed by organizations like ASHA. I wish I believed we could. Having to be completely honest, I have to say no.

As I said, I’m in a mood today.