Our Reality

The buzz around M2H for the past two weeks has been about Secretary Kennedy’s speech. The kind of excitement here is totally thrilling. Personally I am confused as to why this is political at all. Honestly, to me it’s like saying we don’t want to cure cancer. The people who want to stay autistic are welcome to. But those of us who want to be cured have the right to demand the research necessary to cure us. 

I find that I become angry when I think about this. I suffer every day because I can’t speak and I can’t control my body. That is double in my family because my brother is nonspeaking too. My poor mother has to take care of both of us. The people who are protesting can speak and take care of themselves. That is not our reality. 

Our reality is that we are cognitively normal but need more care than can be imagined. That is not how I want to be the rest of my life.